May 1st, 1999. It was a
beautiful day, and I decided
to go sit in my back yard to
get some sun. That morning I
couldn’t have predicted that
my life would be forever
changed. As the weeks
moved forward, I began my
journey of being in and out of
doctors’ offices and becoming
more frustrated and confused
with the medical community.
By July my legs could no
longer hold my body weight, I
had facial paralysis, and a
laundry list of physical
symptoms that didn’t make
sense. I was given numerous
diagnoses, but in the end no
one could explain what was
happening to me. I was 28
years old with what felt like
the body of a 90 year old
and was told by my
“specialist” he didn’t know
what to do with me - I was
overweight, out of shape, and
should seek therapy because
my symptoms were probably
psychological.
This day was life changing for
me because I realized that the
only way I was going to get
Volume 9, Issue 2 Spring 2017
- Promoting healthy relationships and personal growth from a Christian perspective -
Turning a New Leaf
Ways to Help A
Person Struggling
with Chronic Illness:
Learn about the
illness and how it
affects the person.
Tailor activities and
group outings so
friends or family
members can still
participate in the fun.
Be a good listener.
Understand that
chronic illness makes
life unpredictable
and sometimes plans
will be cancelled.
Think simple acts of
kindness—a movie
night, phone call, or
offer of help with
household chores
could dramatically
boost someone’s day!
Living with C h ro nic Illn es s
B y Donna Southard, MA, LCPC, Licensed Mental Health Counselor
world like they want to be
rather than feeling they are a
bystander in their own life,
and living with the memories
of the many things they used
to be able to do, the life they
once had, and the future
dreams now lost. In addition,
many report not feeling safe
to open up about their illness
or how sick they really are.
Sufferers report the need to
pretend they are ok for others
because they make others
uncomfortable. One fighter
stated, “I can feel like I want
to crawl in a hole and die
there, but you’ll never know it.
I can plaster a smile and
choke back the tears, fight
through the day, and you’ll
never see a bit of it. I’ve
been practicing this role of
‘healthy’ for years.” Lastly,
they struggle with guilt –guilt
of not meeting expectations,
not being a good enough
spouse, parent, friend,
employee….
Therefore, if you have a
family member or friend who
is struggling with a chronic
illness, please keep in mind
that you will never be able to
see the true struggle of his or
her illness and that most just
want to feel loved and
supported as an individual,
not just as a sick person. Help
embrace them when they
have good days, and try to
respond on a more positive
note when they have to cancel
plans or are not up to doing
things. Come to them if
possible and work around
their limitations. Be
better was to do my own
research, learn to advocate
for myself, and fight for my
belief that I knew my body
and health better than any-
one. I went on to learn that I
had Lyme Disease. I had
“heard” of Lyme Disease, but
I had no idea what it was
going to mean for my life and
my future. During the next
year my entire body was
attacked by this disease, and
I couldn’t stop it. But to make
matters worse, my life be-
came something I couldn’t
recognize. I was told by
friends that I was probably
over reacting, it must be
something else, or even,
“Wow, that’s bad!” But that is
where it ended. My friends
of years began to quit calling
and ask if I would like to go
out, no one came to visit, and I
went from being very inde-
pendent to feeling helpless
and dependent. My life and
relationships were turned
upside down, and I felt that I
would never be whole again.
I have been fighting to reach
some normalcy now for almost
18 years and have made it
my life’s work to help others
who are also struggling with
chronic illness to face and
accept their challenges, have
an understanding and
listening ear, and learn to
navigate this lonely world we
are pushed in to. Chronic
illness sufferers report feelings
of loneliness, sadness, anger,
and grief. They feel others
view them as lazy or faking
sick and live feeling
abandoned. Most wish more
than anything they had the
energy to be part of the
knowledgeable, have realistic
expectations, and accept that
there is often nothing you can
do to make them feel better.
However, learn to see past
their illness, and enjoy the
friends or family members you
love just as they are. I know I
will never allow my disease to
win, and I will continue to
make the best of the life I’ve
been given.